The ultra sound lasted for an hour and a half because we live in a town with a teaching hospital and the first 45 minutes were spent with the resident trying to figure out where everything was...the last 45 minutes were with the doctor telling us what everything was and taking measurements. At the very end of the ultra sound he scanned through all the pictures - stopping at one of Caden's brain. We really didn't know what we were looking at, but the doctor soon filled us in. It seemed that they found a cyst on his brain. He went on to explain that it was possible this cyst was nothing at all, but it also could be a marker for a disease called Trisomy 18. All I knew about Trisomy 18 was that babies born with this disease don't live, at least not long. The doctor felt that we had a pretty small risk for having a baby with this disease, but this one marker increased our chances - Caden was 3 times more likely to have T18.
We had to quickly make a couple of decisions about what we wanted our next step to be and we decided to start with a follow-up ultra sound - nothing more invasive. We figured we would know enough at that point to make a better decision. And we knew that we would not terminate no matter what.
We were pretty dazed when we left the hospital that day. At least I know I was. I also knew that if I had to talk about it too much I would break down (hormones - they get you every time). So, then we had to make all the calls to our family and friends (who were anxiously waiting) to let them know we were having a boy...and we had to act happy and pretend that everything was great. We had not yet decided what we were going to tell everyone.
We talked about it a lot that night and decided that we were not going to share the news with everyone, just a few people that we knew would pray their hearts out for our baby. We didn't want things to get blown out of proportion or for people to over-react since we knew very little about what was going on at that point. We also did not want to be faced with constant questions.
So we waited. We have waited for 12 weeks to know if our baby is sick. In the meantime we worked on coming to terms with the good and the bad. We felt like God gave us this challenge for a reason and no matter what happened...whether he lived or died...this was our son. God really gave us peace during these long weeks.
And now we know. We know that his cyst has gone away...no trace of it to be found. We know that his body is the exact size that it should be (just with a slightly larger head...runs in the family), his organs have developed perfectly, and he has no markers of this disease at all. He even has a "beautiful" heart according to Dr. Alan. I hope it stays beautiful.
So to everyone who has been praying for our baby - whether you knew any of this or not - we just want to thank you. God has blessed us and we are grateful.
5 comments:
i am SO glad everything looks great now!!! Thanks for the update.
i was actually going to take your advice and send out an e-mail update to everybody to let them know what Y-LIFe was doing but i forgot to send it before i left and now i can't get my e-mail stuff to work up here!!!
i really appreciate the input though! :)
Beautifully written, sis! I'm so glad you can now be completely excited - without any reservations - about having your baby.
Can't wait to rub your belly and talk to Caden. Just a few more days!!
I forgot to say...OH MY GOSH, LOOK AT HIS LITTLE FACE!!!
I am sitting here with the boys, looking at Caden's picture. I told Grant that that is his cousin. He said, "He looks like Levi".
I am trying really hard to see Levi in that picture. I just don't see it. But it does look like he has a big head and he has a really good chance of having red hair...so maybe Grant is more intuitive than I am giving him credit for.
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